Myasthenia Gravis Holistic Society

Myasthenia Gravis Holistic SocietyMyasthenia Gravis Holistic SocietyMyasthenia Gravis Holistic SocietyMyasthenia Gravis Holistic Society
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Myasthenia Gravis Holistic Society

Myasthenia Gravis Holistic SocietyMyasthenia Gravis Holistic SocietyMyasthenia Gravis Holistic Society

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  • Home
  • Myasthenia Gravis
  • About Us
  • Newly Diagnosed
  • Events
  • Holistic Wellness
  • Community Groups
  • Resources
  • Vision Board
  • Shop for a cause
  • MG Physicians
  • Caregivers Corner
  • Donate or Join Us
  • Financial Fitness
  • Access & Advocacy
  • DEI
  • Contact Us
  • Members Only
  • Body in Motion
  • Eating to Live
  • In the Garden
  • Hack That MG
  • Relationships
  • Scholarship Form
  • Soul Support
  • Supplement Support
  • Wellness Journeys

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Access and advocacy

Captial Hill

Common Barriers to Health Care Access

Volunteer with MG Holistic Society

Sondra Rothwell and Dawn Warner attended the legislative fly-in in March with the Autoimmune Association. 

Click to join forces with he Autoimmune Association to support the HELP COPAY ACT.

Volunteer with MG Holistic Society

Common Barriers to Health Care Access

Volunteer with MG Holistic Society

Join our team of volunteers and make a difference in your community. Whether you can give a few hours a week or a few hours a month, your time and skills are appreciated.  We are currently seeking patient advocates. 

Common Barriers to Health Care Access

Common Barriers to Health Care Access

Financial Barriers 
Bias
Transportation
Language & Cultural
Health Literacy
Provider Shortage

Bias & Discrimination

Transportation

Financial

Language & Cultural

Lack of Insurance

Provider Shortage 

Health Literacy

Stigma & Social Determinates of Health

Lack of Technology

Systemic Issues (hours, wait time for appointment)


S652/H.R. 2630 safe step act

 This bill requires a group health plan to establish an exception to medication step-therapy protocol in specified cases. A medication step-therapy (or fail first) protocol establishes a specific sequence in which prescription drugs are covered by a group health plan or a health insurance issuer.  


A request for such an exception to the protocol must be granted if:


 (1) An otherwise required treatment has been ineffective. 

(2) The treatment is expected to be ineffective and delaying effective treatment would lead to irreversible consequences.

 (3) The treatment will cause or is likely to cause an adverse reaction to the individual.

 (4) The treatment is expected to prevent you from performing daily activities (ADL) or occupational responsibilities.

 (5) You are stable on your current prescription drugs already selected by your provider and the drug has been covered by your previous or current insurance plan.


 (6) There are other circumstances as determined by the Employee Benefits Security Administration. 

** Source: Congress.gov

S1375/H.R. 830 Help Copay act

The Act will help reduce patient out-of-pocket expenses by requiring insurance plans to include the copay assistance coupons and other copay  assistance programs towards your deductible.  This means access to more care and lower cost sharing obligations.  Contact your state and house representative and ask for their support!

office of rare disease research

Our Congressional ask was to FULLY fund the Office of Autoimmune Disease Research through the National Institutes of Health.  This allows all of the autoimmune diseases to benefit from the research.  Autoimmune diseases are costly to treat.  A coordinated effort is required to do the research and make the discoveries that will impact autoimmune diseases as a class.  This is already being done for cancer and infections, each of which has a dedicated institute. 

Copyright © 2024 MG Holistic Society - All Rights Reserved.  Disclaimer: Statements made, or products represented through OUT this website, have not been evaluated by the United States Food and Drug Administration. They are not intended to diagnose, Cure, treat or prevent any disease including myasthenia gravis.  You must consult your personal physician prior to trying anything found on this website. the mg holisitic society, its affliates, volunteers, contributers will not held liable for any damages for any injury resulting from content on this site. 

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